Hypophosphatasia

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Barthe Syndrome



Disorders > Other Rare Disorders

Clinical Studies and Trials

Searching for help? There are many studies and trials which may be of interest to you.  

The best site we have found for searching studies from around the country is provided by the National Institutes of Health. Check it out-click here!

Also The MAGIC Foundation has joined forces with Center Watch for Clinical Trial information from around the globe- click here to access this area.

Congenital Adrenal Hyperplasia
Study at UNC click here

New Cushing Syndrome study! Click to see details!

Growth Hormone Deficiency- children
    Is your child making enough growth hormone but still not growing well?  click here  

McCune-Albright Syndrome -Tel: 1-800-236-9933 Call Center for this study

Noonan Syndrome - Does you child have NS and is not growing well? click here

Precocious Puberty 
    A.(non-MAS) Fibrous Dysplasia Ongoing Trial  click here

    B. Testotoxicosis Study click here 

Septo Optic Dysplasia  survey of SOD and ONH families may remain anonymous click here

Turner Syndrome 
    A. Introducing- A growing international database of individuals with Turner syndrome who are willing to participate in scientific surveys and clinical studies. The primary purpose of this new state-of-the art forum for data entry, data collection, and web-based communication is to accelerate research dedicated to understanding Turner syndrome and the problems associated with it.  Anyone with TS can enroll by going to www.tsregistry.org

    B. Turner Syndrome -Prenatal Diagnosis click here

7. Women with Pituitary Problems WANTED   for a  Testosterone Study- for details see document listed in table on the left of this page Click here for additional studies by Dr. Friedman.

8. Clinical Studies and Trials Searchable Database

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This page was last updated on Mon Aug 4, 2008.

 

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