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Catherine’s Story

My Growth Hormone roller coaster manifested itself differently in each decade of my life, in hindsight, from Infancy to my age 49 I was never investigated for a Growth Hormone Deficiency Diagnosis, even though at age 32 I asked to have my Igf-1 tested. It was one point above Low and sadly, the AGHD treatment Guidelines hadn't been written yet.

Everybody has a known or unknown root cause for their deficiency. My Diagnosing Endocrinologist asked me if I had ever been exposed to radiation, probably because my body had sacrificed all but one of my back teeth by cracking, crumbling, breaking, rejecting root canals and chronic Sinusitis until those teeth got pulled.

In fact, I had been breeched and was X-Rayed at 7 months Gestation before the Fetal Ultrasound became available in the USA. This was because I had to be turned safely for a normal birth. My Mom said that the Doctor just tickled me in the right place after that and I turned!

But pregnancy can be a life-threatening thing to the mother and, or baby if fetal problems are not handled well by an Obstetrician who can only really know if the pregnant Mother tells him that she feels there is a problem. My Mom told me that she felt uncomfortable sitting, "Like I was sitting on you." So, the X-Rays were necessary.

I'm just glad that after a lifetime of my major malfunctions of fast Growth, Precocious Puberty, Polycystic Ovarian Syndrome with the works, Plummeting Sugar, Hypothyroidism and Reactive Hypoglycemia since Infancy-which Growth Hormone has helped to level-out for me, that I finally have the Adult Growth Hormone Deficiency Diagnosis. I kept on searching until I found the right Doctors for me, which was try and try again for a while! They are doing the right tests and prescribing the best medications for my personal situation based on my Labs, MRIs, DEXA scans and any other tests they see fit to do. The tests along with my consent to accept the medications the Doctors decide are good for me have all given me a better quality of life and above all, hope for a happier, healthier ageing process now that I'm in Menopause. It's like getting two to three new weeks free out of every month, because I have had PMDD, also.

At first, it was confusing to change lanes from being a life-long Neurology Patient to primarily, an Endocrine Patient but just think of others elsewhere who have gone through similar medical difficulties and lived their whole lives suffering without any clear answers or solutions. We've got it better than that and so we have something big for which to be thankful!

I thank God that I am on the right track for the time I have left in my life, and that with continued good care, I will hopefully enjoy a higher quality of life, and a happier one at that, during an anticipated longer time to be active than I might have had were I never properly diagnosed. "Believe you me", as my Godmother used to say, I am way more thankful to have been on the correct health track over the past 10 years than I ever was during my first 49 years of a pretty miserable existence.

When something is wrong, you just feel it and can fight if you must get it right. It is well worth the trouble. Why? Because when something is right, you know it's right, and that's the best feeling of all.

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