I am a CAH parent and patient advocate. I authored the book Welcome to Congenital Adrenal Hyperplasia: A Handbook for New CAH Families, published several YouTube training videos for patients and families managing adrenal insufficiency, and am working towards implementing state and nationwide changes to EMS protocols to enable first responders to give patient-carried emergency medications to rare disease patients. I love working with MAGIC Foundation families, particularly helping newly diagnosed families navigate the early months. I enjoy playing piano, trail running, musical theatre, and cats.

Thank you for taking the time to meet me.

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