RSS/SGA - A Comprehensive Guide: Understanding Aspects of Children Diagnosed with Russell-Silver Syndrome or Born Small-for-Gestational-Age
Written by Jennifer Salem along with the following physicians and medical professionals: C. Baranoski, P. Czernichow, C. Dumont, J. Gardner, M. Geffner, Y. Getch, M. Harbison, I. Netchine, R. Stanhope, and M. Toumba. Chico, CA:Quadco Printing Co. Inc., 2009 (ISBN No. 978-615-23362-8), pgs. 1-330.

The 330-page RSS/SGA Guidebook is available only through The MAGIC Foundation and includes fifteen chapters ranging from “Physical Characteristics” to “Improving Your Child’s Weight” to “Moving into Adulthood.” Each chapter summarizes and cites the existing published medical research and includes additional clinical experience by the authors. The guidebook also includes many different personal stories and photos of children and families throughout the book, and at the end, there is a lengthy section covering “Parent-to-Parent-Tips” on just about any kind of question you can imagine that is not already covered in the Guidebook.

It is important to note that this Guidebook is appropriate not only for children diagnosed with Russell-Silver syndrome, but any child born SGA who also has postnatal growth failure. Parents have described reading the Guidebook so many times that the pages are worn, they have yellow post-it notes on various pages, etc.

A 2025 2nd edition of the Guidebook will be available for purchase (hard copies or ebook) by early 2025. When we have more information, we will let you know. At this time, we are able to offer a color PDF copy of the 330-page guidebook with a minimum donation of $20.
Click here to make a donation to MAGIC. Select “general donation” from the dropdown and add ‘RSS/SGA guidebook” in the details.

Medical professionals can request a FREE copy by emailing pam@magicfoundation.org